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Articles and Books by DASNI Members

Articles

Norma's Story

My Experiences Learning the Computer by Brian McNaughton

Books by Author



Who Will I Be?

Christine Bryden

Visit Christine's website

Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Since then she has gone on to challenge almost every stereotype of people with dementia by campaigning for self-advocacy, writing articles and speaking at national conferences.

From AA to AD

Mike Donahue

A little more than three years ago Mike was diagnosed with Alzheimer's Disease, (AD). Mike explains his life changing experience of recovery in AA and how that helped him accept his affliction with AD and make the best of it. He relates how this diagnosis brought him so much closer to understanding and appreciating his purpose in life.

From AA to AD, A Wistful Travelogue available at Amazon

Still Alice

Lisa Genova

Still Alice by Lisa Genova

Available at Amazon or Barnes and Noble

DASNI is proud and pleased to announce that author Lisa Genova's book about early-onset Alzheimer's has attracted even greater attention as the movie, Still Alice. Adapted from her book, it has brought actress Julianne Moore a "best actress" Oscar in 2015.

Lisa Genova, long-time DASNI member and author of the New York Times bestselling novel, Still Alice, sought out DASNI in 2004 to learn about what life is like for persons with early onset Alzheimer's. DASNI members feel a parental pride in Still Alice because Genova, who is a neuroscientist, joined DASNI in her words, "to learn as much as I could about what it feels like to live with dementia from people who live with it, rather than from their caregivers or from medical professionals." DASNI was thrilled to find that Genova genuinely listened, really listened, to such an extent that a number of DASNI members think of themselves as "consultants" for her book.

What does it feel like when one is told that one is no longer oneself or when the high level skills one spends a lifetime to achieve evaporate? When people no longer speak to, but now through you, to someone else held responsible for your well-being? Genova addresses these and many other issues in her book.

It is quite a challenge for a writer to convey the thoughts and feelings of a person progressively losing thought and speech. Genova undertakes the challenge by writing Still Alice from Alice's point of view rather than from the point of view of others witnessing her decline. Using her neuroscientist's understanding, her huge compassion, and her ability to make personal relationships with struggling human beings, she makes real the interior lives of people otherwise unknowable to the general public.

Early diagnosis of dementia is essential to allow for maximum quality of life, and it requires the expertise of a neuropsychiatric physician who specializes in dementia. General practitioners may suspect dementia, but they refer a patient to a specialist. Any Alzheimer's Association can refer a person to the best specialists in its area. Assessing for additional conditions that may mimic or exacerbate dementia such as vitamin deficiencies, heart conditions, or sleep apnea should be pursued by family practitioners prepared to treat everything.

Jeanne Lee

Just Love Me: A Life Turned Upside-down by Alzheimers by Jeanne Lee

Just Love Me reveals the thoughts and emotions of a woman struggling with a life that suddenly becomes unmanageable—hospitalizations, suicide attempts, and finally with an arduous search for an accurate diagnosis. Doctors never suspected the cause of her problems to be Alzheimer’s Disease—but it was the culprit.

Lee’s very personal, candid description of her life experiences before, approaching and during the early stages of Alzheimer’s enables readers to better understand people with dementia. By getting inside the mind of the author and experiencing with her worries and frustrations that tormented her then and now, the symptoms of Alzheimer’s become less enigmatic for the reader.

Intended not only for those who have, or think they have Alzheimer’s, Just Love Me is also essential for those who may be interacting with such a person. Alzheimer’s requires a lot of understanding, from both sides of the disease.

Available at Amazon



Tracy Mobley

I Remember When by Tracy Mobley

Available at Booktopia



Young Hope by Tracy Mobley

Available at Amazon

A View from Within

Thaddeus M. Raushi, Ph.D.

A View From Within: Living With Early Onset Alzheimer's by Thaddeus M. Raushi, Ph.D.

Available from Alzheimer's Association New York City Chapter



Show Me the Way to go Home

Larry Rose

Larry's Way: Another Look at Alzheimer's from the Inside (July 2003)

Available from Barnes and Noble


Show Me the Way to Go Home (October 1995)

Available from Amazon

Charles Schneider

Don't Bury Me, It Ain't Over Yet by Charles Schneider

Available at:

Amazon

Author House

Barnes and Noble

Alzheimer's from the Inside Out

Richard Taylor

Alzheimer's from the Inside Out by Richard Taylor

Available at:

Amazon